Neurofibromatosis, Inc.

Note: Blue background indicates NF2 resources are available.

Tennessee

	East Tennessee State University Physicians & Associates Clinical Genetics 325 North State of Franklin Road Johnson City, TN 37604 Phone: (423) 439-8541 Fax: (423) 439-8154	Contact: William Allen, MD
	Orcutt Plastic Surgery Specialists 2210 Murphy Avenue #401 Nashville, TN 37203 Phone: (615) 321-1010 Fax: (615) 321-0022	Contact: Michael Stephanides, MD
	The Otology Group 300 20th Avenue North, # 502 Nashville, TN 37203-5608 Phone: (615) 284-4444 Fax: (615) 284-4448	Contact: NF2 C. Gary Jackson, MD E-mail: ozcycle2@aol.com
	University of Tennessee Health Science Center Suite 523 711 Jefferson Memphis, TN 38105 Phone: (901) 448-6595 Fax: (901) 448-4117 Days of Operation: 2 times a month on W, 1:00pm-5:00pm	Contact: Eniko Pivnick, MD, Dir (Geneticist) E-mail: ekarman@pol.net
	Vanderbilt Hospital Dept. of Neurosurgery , 24224 MCN 1211 22nd Street South Nashville, Tennessee 37232-2380 Phone: (615) 322-7417 Fax: (615) 343-8104	Contact: NF2 George Allen, MD (Neurosurgeon)
	Vanderbilt University, Genetics Clinic DD-2205 Medical Center North Nashville, TN 37232-2578 Phone: (615) 322-7601 Fax: (615) 343-9951	Contact: NF2 John Phillips, MD, Ph.D. (Geneticist) Vickie Hannig, MS

Texas

	MD Anderson Cancer Center NF Clinic Dept. of Pediatrics, Box 087 1515 Holcombe Blvd Houston, TX. 77030 Phone: (713) 792-2454 (713) 792-6615 (Hubbard) Fax: (713) 794-4373 Hours of Operation: Every Tuesday New Patient Referral Office (713) 792-5410 Returning Patients (713) 792-6615	Contact: NF1, NF2 John Slopis, MD, Dir. Archie Bleyer, MD John Kuttesch, MD Joann Alter, MD Bartlett Moore, Ph.D. Evangeline Hubbard, RN
	Applied Genetics, Inc. 1524 S. I.H. 35, Suite 200 Austin, TX 78704 Phone: (512) 443-4363 Fax: (512) 443-5243	Contact: LaDonna Immken, MD
	Baylor College of Medicine/Texas Medical Center Dept. of Neurosurgery & Anesthesiology 6560 Fannin, Suite 944 Houston, TX 77030-3498 Phone: (713) 798-4696 Fax: (713) 798-3739	Contact: NF2 David S. Baskin, MD, FACS (neurosurgeon; Peacock) Robert G. Grossman, MD (Neurosurgeon)
	Baylor College of Medicine/Texas Medical Center Department of Radiology 6565 Fannin, DB1-37 Houston, TX 77030-3498 Phone: (713) 790-2091 Fax: (713) 793-1301	Contact: NF2 Shiao Y. Woo, MD (radiologist) (Peacock specialist)
	Mary Carlin, MD Associate Professor UT Southwestern Medical Center Clinical Practice Location: Children's Medical Center - Dallas 1935 Motor Street Dallas, TX 75235 Appointments: 877-445-1234
	Children’s Hospital of Austin 601 E. 15th Street Austin, TX 78701 Phone: (512) 324-8561 Fax: (512) 324-8891 Email: limmken@sfcaustin.com	Contact: LaDonna Immken, MD (children only)
	Children's Medical Center of Dallas 1935 Motor Street Dallas, TX 75234 Phone: (214) 640-2000 Fax: (214) 456-6040	Contact: Steven Roach, MD Phillip Guzzetta, MD (Surgeon)
	Newton J. Coker, MD (Neuro-otologist) One Baylor Plaza, SM 1727 Houston, TX 77030-3498 Phone: (713) 798-3200 Fax: (713) 798-3403	NF2
	Cook Children’s Genetics 1300 West Lancaster. Suite 204 Fort Worth, TX 76102 Phone: (817) 810-2170	Contact: Mary Kukolich, MD
	Genetics Institute of Austin 711 W. 38th Street, Suite F1 Austin, TX 78705 Phone: (512) 419-1000 Fax: (512) 419-0191	Contact: Debra Freedenberg, MD, Ph.D.
	Herman Hospital Texas Medical Center 6411 Fannin Houston, TX 77030-1501 Phone: (713) 797-4011/1-800-494-2662 Fax: (713) 704-3940	Contact: John Walsh, MD
	Medical City Dallas Hospital 7777 Forest Lane, Suite B420 Dallas, TX 75230 Phone: (972) 566-6444 Fax: (972) 566-6627	Contact: NF2 Martin L. Lazar, MD, FACS (Neurosurgeon) E-mail: dr.lazar@neurosurgerydallas.com
	The Multidisciplinary Neurofibromatosis Clinic Children's Medical Center of Dallas 1935 Motor Street Dallas, TX 75235 Telephone: 214-456-6139 Fax: 214-456-6151	Contact: Daniel C. Bowers, MD Shane Valles
	The Neurological Clinic of Texas 7777 Forest Lane Bldg B#410 Dallas, TX 75230 Phone: (972) 566-7684 Fax: (972) 566-7023	Contact: Richard North, MD
	The Neurological Clinic of Texas 8440 Walnut Hill Lane, Ste. 550 & 320 Dallas, TX 75231 Phone: (214) 345-1299 Fax: (214) 345-1297	Contact: Bill Woodfin, MD
	San Antonio Military Pediatric Center 2200 Bergquist Drive 859 MDOS MMNP Lackland Air Force Base, TX 78231	Contact: Josh Rotenberg, MD Joshua.rotenberg@lackland.af.mil
	Texas Children's Hospital Genetics Clinic 1102 Bates Suite C-235 Houston, TX 77030 Phone: (832) 824-4280 Fax: (832) 824-4294 NF Clinic: 1st Friday of every month	Contact: Mike Frazier Clinical Operations Mgr Sharon Plon, MD
	The University of Texas Health Science Department of Genetics Center 7703 Floyd Curl Dr. San Antonio, TX 78229-3900 Phone: (210) 567-5195 Fax: (210) 567-6921	Contact: Stuart K. Shapir, MD Ph.D. (Geneticist)
	University of Texas Medical Branch 2476 Bolsver Street, #635 Houston, TX 77005 Phone: (713) 942-2182 Fax: (713) 942-0265	Contact: NF2 Rosa Tang, MD (Neuro-ophthalmologist) E-mail: messenger2020@aol.com
	University of Texas Southwestern Medical Center at Dallas Department of Neurological Surgery 5323 Harry Hines Blvd. CS5.508 Dallas, TX 75390-8855 Phone: (214) 648-4800 Email: bruce.mickey@utsouthwestern.edu	Contact: NF2 Bruce Mickey, M.D.

Utah

	University of Utah School of Medicine Department of Otolaryngology 3C120 SOM 50 North Medical Drive Salt Lake City, UT 84132 Phone: (801) 581-8915	Contact: NF2 Clough Shelton, MD (Neuro-Otology)
	University of Utah School of Medicine Genetics Program, Room 2C412 NF Clinic 50 North Medical Drive Salt Lake City, UT 84132 Phone: (801) 581-8943 Dr. Viskochil (801) 581-8943 Fax: (801) 585-7252	Contact: NF1 & NF2 David Viskochil, MD, Ph.D. (Geneticist) John Carey, MD Janice Palumbos, MS, CGC Karin Dent, MS, CGC

Virginia

	Children’s Hospital of the King’s Daughters Child & Adolescent Neurology 850 Southampton Avenue Norfolk, VA 23510 Phone: (757) 668-9920 Fax: (757) 668-9930	Contact: L. Matthew Frank, MD
	Children’s Hospital of the King’s Daughters Division of Medical Genetics Dept. of Pediatrics 601 Children’s Lane Norfolk, VA 23507-1971 Phone: (757) 668-9723 Fax: (757) 668-9724 E-mail: vproud@chkd.com	Contact: Virginia K. Proud, MD (Geneticist)
	Medical College of Virginia, Human Genetics Box 980033 Richmond, VA 23298-0033 Phone: (804) 828-9632 Fax: (804) 828-3760 E-mail: bodurtha@hsc.vcu.edu	Contact: Joann Bodurtha, MD (Geneticist) Steve Rice, Coordinator
	David Schiff, MD Neuro-Oncology Center Departments of Neurology, Neurological Surgery, and Medicine (Hematology-Oncology) University of Virginia Health System Box 800432 Charlottesville, VA 22908-0432 (434) 982-4415 (T) (434) 982-4467 (F)
	University of Virginia Health Science Center Div. of Medical Genetics/Pediatrics Box 800386 Charlottesville, VA 22908 Phone: (804) 924-2665 Fax: (804) 982-3850	Contact: Thaddeus Kelly, MD, Ph.D. (Geneticist) Pat Allinson, MS
	David C. Waters, MD (Neurosurgeon) 580 East Main Street, #200 Norfolk, VA 23510 Phone: (757) 625-4455 Fax: (757) 625-1829	NF2

Washington

	Douglas Backous, M.D. Otolaryngologist Listen for Life Center Virginia Mason Medical Center 1100 Ninth Avenue Seattle, WA 98101 Phone 206-223-6374	NF2
	Children’s Hospital and Medical Center Medical Genetics P.O. Box 5371/CH25 Seattle, WA 98105 Phone: (206) 987-2665 Fax: (206) 987-2495	Contact: Stephanie Wallace, M.D. Dawn Earl, ARNP Darci L. Sternen MS, CGC
	Dr. Joseph Gruss (Plastic Surgeon) Children's Hospital Department of Surgical Services 4800 Sandpoint Way NE #G0035 Seattle, WA 98105 Phone: (206) 987-2039
	Maciej M. Mrugala, M.D., Ph.D., MPH Assistant Professor Department of Neurology University of WA School of Medicine Office phone 206-543-2340 Office fax 206-598-7919
	James E. Raisis, MD (Neurosurgeon) 801 Broadway, #617 Seattle, WA 98122 Phone: (206) 623-0922 Fax: (206) 623-1588	NF2
	Seattle Ear Clinic 600 Broadway, #340 Seattle, WA 98122 Phone: 1-800-377-4075 Fax: (206) 328-4404	Contact: NF2 Charles Maugham, Jr., MD (Neuro-otologist) May Huang, MD (Neuro-otologist)
	Laligam N. Sekhar, M.D. UW Medicine Harborview Medical Center Dept. of Neurosurgery 325 Ninth Avenue Box 359924 Seattle, WA 98104 Phone: 206-744-9300 Fax: 206-744-9944	Contact: NF2
	Swedish Medical Center Tumor Institute 1221 Madison Street Seattle, WA 98122-4307 Phone: (206) 386-2323 Fax: (206) 386-2393	Contact: NF2 Sandra Vermeulen, MD (Oncology)
	University of Washington Medical Genetics (Pediatric & Adult) Box 357720 Seattle, WA 98195-7720 Phone: (206) 598-4030 Fax: (206) 598-3269 For dermatology (Group Health): (206) 326-2111	Contact: Virginia P. Sybert, M.D. Robin Bennett, MS robinb@u.washington.edu

West Virginia

	West Virginia University Health Science Center P.O. Box 9214 Morgantown, WV 26506-9214 Phone: (304) 293-7332 Fax: (304) 293-4337	Contact: NF2 Marybeth Hummel, MD (Geneticist)
	West Virginia University Pediatric Health Science Center PO Box 9214 Morgantown, WV 26506-9214 Phone: (304) 293-7332 Fax: (304) 293-4337	Contact: Marybeth Hummel, MD (Geneticist)
	West Virginia University Robert C. Byrd Health Sciences Center Department of Obstetrics and Gynecology P.O. Box 9186 Morgantown, WV 26506-9186 Phone: (304) 293-5631 Fax: (304)-293-2131 email: aobringer@hsc.wvu.edu	Contact: Angela Obringer, Ph.D.

Wisconsin

	Children's Hospital of Wisconsin Genetics & Birth Defects Center NF Clinic 9000 West Wisconsin Avenue Mail Station #716 Milwaukee, WI 53226 Phone: (414) 266-3347 Fax: (414) 266-1616 1st Wed afternoon of each month- follow up only 3rd Wed all day- new patients	Contact: Luann Weik, MS Heather Radtke, MS
	Benjamin Lawler, MD Marshfield Clinic 1000 North Oak Avenue Marshfield, WI 54449 Phone: 1-800-699-3377 (appointments)	NF2 (Adults Only)
	University of Wisconsin - Madison Neuromuscular Retraining Clinic 2710 Marshall Court Madison, WI 53705 Phone: (608) 263-2935	Contact: NF2 Jacqueline Diehl, OTR (facial rehab specialist)

Wyoming

Cheyenne Medical Specialists
5050 Powderhouse Road
Cheyenne, WY 82009
For appts call: 307-634-1311
Fax: 307-432-7546

Contact: NF1 and NF2
Dr. Mary L Kerber (neurologist)
Dr. Reed Shafer (neurologist)

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