Neurofibromatosis, Inc.

Note: Blue background indicates NF2 resources are available.

Ohio

	Center for Human Genetics University Hospitals Health System Lakeside 1500 11100 Euclid Avenue Cleveland, OH 44106 Phone: (216) 844-3936 Fax: (216) 844-7497	Contact: Georgia L. Wiesner, MD Asst. Prof. Of Genetics & Medicine Medical Director, Cancer Genetics Program
	Children’s Hospital Medical Center Genetic Center One Perkins Square Akron, OH 44308 Phone: (330) 543-8792 Fax: (330) 543-3677 Hours of Operation: Monday-Friday, 8:30am-5pm	Contact: Haynes B. Robinson, MD Meral Gunay-Aygun, MD
	Cincinnati Children's Hospital Medical Center Department of Orthopedic Surgery Outpatient Services Building, 3rd Floor 3333 Burnet Avenue Cincinnati, OH 45229-3039 Phone: (513) 636-4785 or 1-800-344-2462, ext 4785 Fax: (513) 475-3928	Contact: Alvin Crawford, MD
	Cincinnati Children's Hospital Medical Center Division of Human Genetics Pavilion 3-52 3333 Burnett Avenue Cincinnati, OH 45229 Phone: (513) 636-8826 (Pediatric & Adult Services) 1-800-344-2462, ext 6-8826 Fax: (513) 636-7297	Contact: (Geneticists) Elizabeth Schorry, MD Howard Saal, MD Robert Hopkin, MD Anne Lovell, MSN, RN (Coordinator)
	Cleveland Clinic NF Center 9500 Euclid Avenue, Desk A 120 Cleveland, OH 44195-5045 Phone: 1-800-223-2273 (216) 444-5514 Dr. Bruce Cohen: (216) 444-9182 Fax: (216) 445-9139 Days of Operation: M-F, 9:00am-5:00pm	Contact: NF1 & NF2 A. David Rothner, MD (Pediatric Neurologist) Bruce Cohen, MD (Pediatric Neurologist) Bryan Clark, MD Mark Luciano, MD
	Mayfield Clinic & Spine Institute University Medical Arts Building 222 Piedmont Avenue, Suite 3100 Cincinnati, OH 45219 513-475-8668	Contact: NF2 Philip V Theodosopoulos, MD (Neurosurgeon)
	Ohio State University Department of Pediatrics 700 Children’s Drive Columbus, OH 43205 Phone: (614) 722-3535	Contact: Joan Atkin, MD
	Dr. Myles Pensak Medical Arts Building 222 Piedmont Ave., Suite 5200 Cincinnati OH 45219 Phone: (513) 475-8400 Fax: (513) 475-8228	Contact: NF2
	University of Cincinnati Dept. of Medicine/Pediatrics 234 Goodman Avenue, 2nd Floor Cincinnati, OH 45219 Phone: (513) 584-7425 or 1-800-344-2462 ext.6-8826 Fax: (513) 636-7297	Contact: Caroline Mueller, MD (Int Med/Pediatrics) Anne Lovell, MSN, RN (Coordinator)
	Dr. Bradley Welling (Otolaryngology) 4114 Cramblett 456 W 10th Avenue Columbus, OH 43210 Phone: 614 293 8706 Email: welling.1@osu.edu	NF2

Oklahoma

	Neuroscience Institute at Mercy 4140 W. Memorial Road, Suite 221 Oklahoma City, OK 73120 Phone: (405) 749-7000 Fax: (405) 752-3977	Contact: Gary Brown, Ph.D.
	University of Oklahoma Health Sciences Center 940 NE 13th Street Children's Hospital of Oklahoma Oklahoma City, OK 73104 Phone: (405) 271-8685 Fax: (405) 271-8697	Contact: NF1 & NF2 John J. Mulvihill, MD (Geneticist) john-mulvihill@ouhsc.edu J. Rodman Seely, MD, Ph.D.

Oregon

	Child Development & Rehab Center Oregon Health Sciences University Clinical Services Building, 901 East 18th Eugene, OR 97403 Phone: (541) 346-0455 Fax: (541) 346-5844 Days of Operation: M-F, 8-5	Contact: Susan Hayflick, MD Ellen Magenis, MD Marianne Taylor, RN Jonathon Zonana, MD
	Legacy Emanuel Children’s Hospital Clinical and Biochemical Genetics 2801 No Gantenbein Avenue Portland, OR 97227 Phone: (503) 413-4505 Fax: (503) 413-4719	Contact: George Anadiotis, DO
	Oregon Health & Science University Child Development/Rehab Center CDRC Box 574 Portland, OR 97201 Phone: (503) 494-8307 Fax: (503) 494-2786	Contact: Jonathon Zonana, MD Karen Kovak, MS Stein Berger (Clinic Manager)
	Oregon Health Sciences University Division of Neuro-Oncology & Skull-Base Surgery 3181 SW Sam Jackson Park Road, #L-472 Portland, OR 97201-3098 Phone: (503) 494-7737 Fax: (503) 494-7161	Contact: NF2 Johnny Delashaw, MD (Neurosurgeon) e-mail: deleshaw@ohsu.edu Sean O. McMenomey, MD E-mail: mcmenome@ohsu.edu
	Shriners Hospital for Children 3101 SW Sam Jackson Park Road Portland, OR 97239 Phone: (503) 241-5090 Fax: (503) 221-3475	Contact: J. Ivan Krajbich, MD Charles d’Amato, MD Kelly Alexander, RN Chris Sweeney, RN

Pennsylvania

	Albert Einstein Medical Center Genetics Division, 5501 Old York Road Philadelphia, PA 19141 Phone: (215) 456-8722 Fax: (215) 456-2356	Contact: Adele Schneider, MD (Geneticist) Email:scheida@einstein.edu Rosanne Keep, MS, CGS
	Children's Hospital of Philadelphia Oncology Clinic 34th Street & Civic Center Blvd. Philadelphia, PA 19104 Phone: (215) 590-2299 Fax: (215) 590-4183	Contact: Jean Belasco, MD Peter Phillips, MD Elaine Zackai, MD (Evaluation) Anna Meadows, MD Rachel Hachen, MD (Follow-up) Diane Howard, RN
	Magee-Women's Hospital Dept. of Genetics 300 Halket Street Pittsburgh, PA 15213 Phone: (412) 641-4168 Fax: (412) 641-1032	Contact: Elizabeth McPherson, MD
	Pittsburgh Ear Associates 420 East North Avenue, Suite 402 Pittsburgh, PA 15212-4746 Phone: (412) 359- 6690 Fax: (412) 321-3229	Contact: NF2 Douglas Chen, MD (Neurotologist) Moises Arriago MD (Neurotologist) (limited to ear, facial nerve & related structures)
	St. Christopher's Hospital for Children Eric Avenue at Front Street Philadelphia, PA 19134-1095 Phone: (215) 427-8413 Fax: (215) 427-8358	Contact: Libby Anderson, MD
	Thomas Jefferson University Hospital 1015 Chestnut Street, Suite 617 Philadelphia, PA 19107 Phone: (215) 925-8650 Fax: (215) 925-3821	Contact: NF1 & NF2
	University of Pennsylvania Health System Division of Medical Genetics 3400 Spruce Street, 1 Maloney Philadelphia, PA 19104-4283 Phone: (215) 662-4740 Fax: (215) 614-0298	Contact: NF1 & NF2 Reed Pyeritz, MD, Ph.D. (Geneticist) Douglas C. Biglow, MD (Otolaryngologist) Phone: (215) 662-6970 Fax: (215) 349-5977 Katherine Nathanson, MD Barbara A. Bernhardt, MS Lynn Godmilow, MS Lisa Kessler, MS
	University of Pittsburgh Cancer Centers Adult Neuro-Oncology Service UPMC Cancer Pavillion 5150 Centre Avenue Pittsburgh, PA 15232 Phone: (412) 692-2600 Fax: (412) 692-2610 Email: liebermanf@msx.upmc.edu	Contact: Frank Lieberman MD
	University of Pittsburgh Children's Hospital NF Clinic, 3705 Fifth Avenue Pittsburgh, PA 15213 Phone: (412) 692-5520 Fax: (412) 692-6787	Contact: Gulay Alper, MD Sinikka Davis, MSW Kathy Gardner, MD (Neurology)
	University of Pittsburgh Medical Center Eye & Ear Institute 203 Lothrop Street Pittsburgh, PA 15213 Phone: (412) 647-2200 Fax: (412) 647-9607 (Option for Scheduling 1-800-446-3797)	NF2
	UPMC Presbyterian Department of Neurosurgery 200 Lothrop Street, #B400 Pittsburgh, PA 15213 Phone: (412) 647-0988 Fax: (412) 647-6483	Contact: NF2 L. Dade Lunsford, MD (Neurosurgeon) (gamma knife) Ophthalmology (412) 647-2256
	Jack E. Wilberger, Jr., MD (Neurosurgeon) 420 East North Avenue, Suite 302 Pittsburgh, PA 15212-4746 Phone: (412) 359-6200 or 1-800-445-2340 Fax: (412) 359-6615	NF2

Puerto Rico

	Hospital Pediatrico Universitario Puerto Rico Hereditary Disease Program G.P.O. Box 365067 San Juan, PR 00936-5067 Phone: (787) 754-7410	Contact: NF2 Pedro J. Santiago Borrero, MD (Geneticist)
	Hospital Pediatrico Universitario Recinto Ciencias Medicas, U.P.R. G.P.O. Box 365067 San Juan, PR 00936-5067 Phone: (787) 754-7410	Contact: Pedro J. Santiago Borrero, MD Director, Puerto Rico Hereditary Disease Program
	San Jorge Children's Hospital Calle San Jorge #252, Suite 408 Santurce, PR 00912 Phone: (787) 728-8316 or (787) 727-1000 ext. 4475 Fax: (787) 840-5698	Contact: Alberto Santiago-Cornier, MD Genetics & Metabolism Service Email: scornier@psm.edu
	Diana Valencia, MS Puerto Rico Department of Health PO Box 70184 San Juan, PR 00936-8184 Tel. (787) 274-5645 Fax: (787) 764-4259 E-mail: dvalencia@salud.gov.pr

Rhode Island

	New England Gamma Knife Center 593 Eddy Street, Grosvenor Bldg. #123 Providence, R.I. 02903 Phone: (401) 444-4257 Fax: (401) 444-6126	Contact: NF2 Georg Noren, MD, Ph.D. E-mail: GNoren@Lifespan.org
	Rhode Island Hospital NF Clinic, 593 Eddy Street Providence, RI 02903 Phone: (401) 444-8361 Fax: (401) 444-3288	Contact: Dianne Abuelo, MD

South Carolina

	Greenwood Genetic Center One Gregor Mendel Circle Greenwood, SC 29646 Phone: (888) GGC-GENE (Adult & Pediatric) Fax: (864) 941-8114 website: www.ggc.org	Contact: Robert Saul, MD
	Medical University of South Carolina Division of Genetics & Child Development 135 Rutledge, Room 395 PO Box 250561 Charleston, SC 29425 Phone: (843) 876-1516 Fax: (843) 876-1518 E-mail: hammondl@musc.edu Days of Operation: by appointment	Contact: G. Shashidhar Pai, MD Bernard Maria, MD, MBA (pediatric neurologist)

South Dakota

Dr. Laura Davis Keppen
Sanford Children's Specialty Clinic
1305 W. 18th St
PO Box 5039
Sioux Falls, SD 57117
Ph: 800-850-0064
Fax: 605-333-1944

NF1, NF2

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