Neurofibromatosis, Inc.

Note: Blue background indicates NF2 resources are available.

Maine

Steven Amato, M.D., Ph.D.
Eastern Maine Medical Center
417 State Street, #310
Bangor, ME 04401-6613

Telephone: (207) 973-7586
Fax: (207) 973-7674

email: samato@emh.org

Maryland

	Harvey Institute for Human Genetics Greater Baltimore Medical Center 6701 North Charles Street, Room 2315 Baltimore, MD 21204 Phone: (443) 849-3192 Fax: (443) 849-2919	Contact: Antoine Kline, MD (Geneticist) Patricia Williams (Clinical Genetics Coordinator)
	Johns Hopkins Comprehensive NF Center Johns Hopkins Hospital 600 N. Wolfe St., Phipps 117 Baltimore, MD 21287 Phone: 410-614-3853 Fax: 410-502-2797	NF1, NF2, Schwannomatosis Contact: Amanda Bergner, MS CGC, Clinical and Research Coordinator Director: Dr. Jaishri Blakeley, Adult Neurologist Pediatric Neurologist: Dr. Lori Jordan Neurosurgeon: Dr. Allan Belzberg
	Kennedy Krieger Institute 707 North Broadway, 5th Floor Baltimore, MD 21205 Phone: (443) 923-9250 (443) 923-9200 (front desk) (410) 298-7000 (family support)	Contact: Martha B. Denckla, MD (Neurologist)
	McKusick-Nathans Institute of Genetic Medicine Johns Hopkins Hospital 600 N. Wolfe Street. Blalock 1008 Baltimore, MD 21287-4922 Phone: (410) 614-4655 (Dr. Kahler) (410) 955-3071 Fax: (410) 614-9246 Email: skahler1@jhmi.edu Days of Operation: Clinic Tues, 8:30am-5:00 PM. Avail. by phone M-F	Contact: Ada Homosh, MD, Dir Clinical Gen Nancy Braverman, M. D. Simeon Boyd, M. D. Gregg Semenza, M. D. Mimi Jabs, M. D.
	Neil Miller, MD Professor of Ophthalmology, Neurology and Neurosurgery Wilmer Eye Institute at John Hopkins University 600 N. Wolfe St. Baltimore, MD. 21287 Phone: 410-955-5080	NF2
	National Cancer Institute – Pediatrics Oncology Division Pharmacology and Experimental Therapeutics Section Phone: (301) 496-0085 (Dr. Balis) (301) 496-7387 (Dr. Widemann) Fax: (301) 480-8871 Email: balisf@nih.gov widemanb@mail.nih.gov	Contact: Frank Balis, MD Brigitte Widemann, MD.
	National Human Genetics Research Institute Bldg. 10, Rm 10C103 10 Center Drive, MSC 1851 Bethesda, MD 20892-1851 Phone: (301) 402-2731 Fax: (301) 496-2740 Days of Operation: M-F, 8:30am-5:00pm Phone: (410) 955-9466 (appointment) Fax: (410) 614-1296	Contact: William Gahl, MD, Ph.D. Director: bgahl@helix.nih.gov Les Biesecker, MD (Proteus Syndrome) (ph: 301-435-2832) Joyce Turner, MS
	Shady Grove Orthopedic Associates 20528 Boland Farm Road Germantown, MD 20874 Phone: (301) 528-8090 Fax: (301) 528-8083 (Treats NF1 and NF2 patients, children and adults)	Contact: Steven L. Tuck, MD (Pediatric Orthopedist)
	Shady Grove Orthopedic Associates 9715 Medical Center Drive #415 Rockville, MD 20850 Phone: (301) 340-9200 Fax: (301) 340-7235 Days of Operation: Mon- Fri 9:AM-4:PM (Treats NF1 and NF2 patients, children and adults)	Contact: Steven L. Tuck, MD (Pediatric Orthopedist)
	Douglas R. Stewart, MD National Human Genome Research Institute National Institutes of Health 49 Convent Drive Building 49, Room 4A62 Bethesda, MD 20892-4472 Office: (301) 451-7716 (office) Lab: (301) 496-0927 Fax: (301) 402-2170	Variation in Gene Expression in Neurofibromatosis Type 1 Study: http://www.genome.gov/16015146
	University of Maryland 100 No. Greene Street Baltimore, MD 21201 Phone: (410) 328-3335 Fax: (410) 328-5484	Contact: Carole Green, MD (Geneticist)

Massachusetts

	Boston Children's Hospital NF Program, 300 Longwood Avenue Boston, MA 02115 Phone: (617) 355-6394 Fax: (617) 738-3574	Contact: Mira Irons, MD Caroline McGowan, MS
	Jean-Valery Coumans, M.D. Spinal Neurosurgeon Massachusetts General Hospital WACC 021 Boston, MA. 02114 Phone 617-726-3776 e mail: jcoumans@partners.org
	Harvard Vangard Medical Assoc. Genetics Dept. 133 Brookline Avenue Boston, MA 02215 Phone: (617) 421-3320 Fax: (781) 647 -5767 Days of Operation: T, 1:00pm-6:00pm, W, 1:00pm-4:00pm	Contact: Susan Pauker, MD
	Massachusetts General Hospital 55 Fruit Street, WHT 502 Phone: (617) 726-8581 Fax: (617) 726-4814 Boston, MA 02114-2696	Contact: NF2 Robert L. Martuza, MD (Neurosurgeon) E-mail: rmartuza@partners.org
	Massachusetts General Hospital Cox-3, Dept. of Radiation Oncology 55 Fruit Street Boston, MA 02114 Phone: (617) 724-1156	Contact: NF2 Allan Thornton, MD (radiologist) (proton beam)
	Massachusetts General Hospital Dept. of Radiation-Oncology 100 Blossom Street Boston, MA 02114 Phone: (617) 724-1548 Fax: (617) 724-4015	Contact: NF2 Jay Loeffler, MD (proton beam) E-mail: jloeffler@partners.org
	Massachusetts General Hospital NF Clinic Pappas Center for Neuro Oncology 55 Fruit Street Yawkey 9, Boston, MA 02114 Phone: 617-724-8770 splotkin@partners.org	Contact: NF1 & NF2 Scott Plotkin, MD, PhD, NF Clinic Director
	New England Medical Center Division of Genetics 750 Washington Street, #340 Boston, MA 02111 Phone: (617) 636-5462 Fax: (617) 636-0745	Contact: Diana Bianchi, MD Deborah Tumber Division Coordinator

Michigan

	Henry Ford Hospital - NF Clinic Department of Medical Genetics 2799 W. Grand Blvd., CFP-4 Detroit, MI 48202 Phone: (313) 916-3188 Fax: (313) 916-1730	Contact: Jacqueline Roberson, MD Alexander Asamoah, MD, Ph.D.
	West Michigan Neurofibromatosis Center Spectrum Health Musculoskeletal Building 230 Michigan St. NE, Suite 100 Grand Rapids, MI 49503 HOURS: Friday 8:15-4:00 pm Children weekly; adults biweekly (afternoons only) APPOINTMENTS: 616-391-2414 INFORMATION: 616-451-3699	Contact: Karen VanderLaan, MD (Pediatrician) Bernard Eisenga, MD (Internist)
	University of Michigan Hospital NF Center/Div. of Molecular Med. & Genetics 4301 MRSB III, Box 0638 1150 West Medical Center Drive Ann Arbor, MI 48109-0638 Phone: (734)763-2532 Fax: (734) 763-7672 Days of Operation: M-F, 8:00am-5:00pm	Contact: David Ginsburg, MD Elizabeth Petty, MD Thomas Gelehrter, MD Jane Nicholson, MD Stephen B. Gruber, MD, Ph.D.
	University of Michigan Hospital NF Center/Div. of Pediatric Genetics Box 0688 3570 MSRB II Ann Arbor, MI 48109-0688 Phone (734) 764-0579 Fax (734) 763-6561	Contact: Jeffrey Innis, Ph.D.

Minnesota

	Children's Hospitals and Clinics of Minnesota Neurocutaneous Syndromes Clinic Clinic sites: Minneapolis and St Paul Mailing address: 2525 Chicago Ave South, MS 32-T6 Minneapolis, MN 55404 Phone: 612-813-7076 Alternate: 651-220-6884 Fax: 612-813-6360	Contact: NF1 & NF2 Nancy Mendelsohn, MD (Medical Director) Elizabeth Siqveland, nurse practitioner Dinel Pond, genetic counselor Jennifer House, assistant
	Gillette Children's Specialty Healthcare Neurocutaneous Syndromes Clinic Clinic site: St Paul 200 East University Avenue St. Paul, Minnesota 55101 Phone: (651) 291-2848 (800) 719-4040	Michael Partington, MD (Medical Director) Elizabeth Siqveland, nurse practitioner Dinel Pond, genetic counselor Natalie Norsted, nurse
	Mayo Clinic Dept. of Medical Genetics 200 First Street SW Rochester, MN 55905 Phone: (507) 284-8198 Fax: (507) 284-1067 Days of Operation: M-F, 8:00am-5:00pm	Contact: Mary Kelly, Coordinator Dusica Babovic-Vuksanovic, MD
	Mayo Clinic 200 First Street SW Rochester, MN 55905 Phone: (507) 284-8198 (appointments) Fax: (507) 284-3907	Contact: NF2 Colin L.W. Driscoll, MD (Otolaryngologist) (507) 284-4065 Michael Link, MD (Neurosurgeon) (507) 538-1564 Robert J. Spinner, MD (Neurologic surgery) spinner.robert@mayo.edu
	University of Minnesota Medical Center, Fairview NF Clinic/Genetics Clinic 420 Delaware Street SE MMC Box 485 Minneapolis, MN 55455 Phone: 612-626-6777 (appointments) Fax: 612-624-6645	Contact: Susan Berry, MD (Geneticist) Chris Moertel, MD Lisa Schimmenti MD (Geneticist) Chester B. Whitley, MD, Ph.D. (Geneticist) Lawrence Charnas MD, Ph.D. (Neurologist) Karol Rubin, MS (Genetic Counselor) 612-625-2472 Cheri Schoonveld (Genetic Counselor) 952-924-5574 Cindy Lorentz (Clinic Coordinator) 612-624-6467

Mississippi

	Hans-Georg O. Bock, MD, PhD, FACMG (Clinical Genetics and Clinical Biochemical Genetics) Chief, Division of Mississippi Medical Center Genetics Clinic, 2500 North State Street Jackson, MS 39216 Phone: (601) 984-1900 Fax: (601) 984-1916
	Lon Alexander, MD (Neurosurgeon) 971 Lakeland Drive, Suite 1054 Jackson, MS 39216 Phone: (601) 982-8121 Fax: (601) 982-2662
	University of Mississippi Medical Center Neuro-genetics Clinic 2500 North State Street Jackson, MS 39216 Phone: (601) 984-1900 (Dr. Friedrich) - Genetics Fax: (601) 984-1916 Phone: (601) 984-5500 (Dr. Parent) - Neurosurgery Phone: (601) 984-5210 (Dr. V. Veda) - Pediatric Neurology Fax: (601) 984-5503	Contact: NF1 & NF2 Chris Friedrich, MD, Ph.D. (Geneticist) Andrew Parent, MD V. Veda, MD Ginger Barnett, Coordinator

Missouri

	Cardinal Glennon Children's Hospital NF Clinic 1465 S. Grand Blvd. Saint Louis, MO 63104-1095 Phone: (314) 577-5600 ext. 6017 Fax: (314) 268-4062 Days of Operation: 1st and 3rd W of each month - Mornings	Contact: Jun Oiumi, MS Thomas Geller, MD (Pediatric Neurologist) Lydia Johnson, RN BSN (Clinic Coordinator)
	Children's Mercy Hospitals and Clinics 2401 Gillham Road Kansas City, MO 64108 816-234-3040 dbruegge@kumc.edu	Contact: Daniel E. Bruegger, MD Pediatric Otolaryngology
	Midwest Ear Institute 4200 Pennsylvania, #100 Kansas City, MO 64111 Phone: 816-932-1660 Fax: 816-531-1404	Contact: NF2 Charles Luetje, MD
	University of Missouri Hospitals & Clinics Department of Child Health Division of Medical Genetics One Hospital Drive Columbia, MO 65212 Phone: (573) 882-6991 Fax: (573) 884-3543	Contact: Stephen Braddock, MD (Geneticist) Judith H. Miles, MD, Ph.D.
	Washington University Neurofibromatosis Clinic Department of Neurology One Children's Place, Second Floor, Suite D St. Louis, MO 63110 Phone: (314) 454-6120 Fax: (314) 454-2523 Days of Operation: 2nd & 4th Thursday of each month, 8:00am-5:00pm	Contact: David H. Gutmann, M.D., Ph.D. (Director)

Montana

Dr. J Johnson
114 1/2 South 31st St
Billings, MT 59101

Phone: 1-800-447-6614
Ask for genetics

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