Neurofibromatosis, Inc.

Note: Blue background indicates NF2 resources are available.

Idaho

State of Idaho, Department of Health and Welfare
Genetics Services Program
2220 Old Penitentiary Road
Boise, ID 83712
Phone: (208) 334-2235 ext 258
Fax: (208) 334-2382

Contact:
Anne Spencer, MS, CGC

Illinois

	Children's Memorial Hospital NF Clinic Division of Genetics Box 59 2300 Children's Plaza Chicago, IL 60614 Phone: (773) 880-4462 Fax: (773) 929-9565 Days of Operation: 1st, 2nd, 3rd Thu of each month, 8:00am-noon	Contact: Joel Charrow, MD Robert Listernick, MD Katherine Kim, MS Dinel Pond, MS
	Southern Illinois University School of Medicine Dept. of Peds. Division of Genetics & Metabolism PO Box 19658 Springfield, IL 62794 Phone: (217) 782-4839 Fax: (217) 557-5834	Contact: Virginia Kimonis, MD Michael Schneider, MD Shawnia Forrester, MS, CGC
	University of Chicago Department of Plastic Reconstructive Surgery Phone: (312) 335-9566 (773) 834-7302 (clinic) Fax: (312) 335-1681	Contact: Lalu Shore
	University of Chicago Children's Hospitals 5839 S. Maryland Ave. MC3055 Chicago, IL 60637 Appointments & General Inquiries: 773-203-2344 Dr. Tonsgard: 773-702-6487	Contact: NF1 & NF2 James Tonsgard, MD Cynthia MacKenzie, RN
	University of Illinois College of Medicine 1855 West Taylor Street Mail Code 648 UIC Eye Center, Rm. 205 Chicago, IL 60612 Phone: (312) 996-6599 Fax: (312) 996-7770 Days of Operation: 2nd W, 1-5pm	Contact: Benjamin Ticho, MD Robert Egel, MD Allen Horwitz, MD Anna Newlin, MS, CGC
	University of Illinois College of Medicine Department of Pediatrics 507 E. Armstrong Peoria, IL 61603 Phone: (309) 681-6969 Fax: (309) 681-6965	Contact: George Hoganson, MD
	Richard J. Wiet, MD (Otolaryngologist) 950 No. York Road, # 102 Hinsdale, IL 60521-2950 Phone: (630) 789-3110 Fax: (630) 789-3137

Indiana

	Indiana University NF Clinic Riley Children’s Hospital, Department of Neurology 541 Clinical Drive, CL291 Indianapolis, IN 46202 Phone: (317) 278-0270 (for information) (317) 274-2372 (for scheduling appointments) Fax: (317) 274-3619	Contact:NF1 & NF2 Cynthia M. Hingtgen, MD, Ph.D. Laurence E. Walsh, M.D. Celanie Christensen, MS, CGC (Coordinator) (Sees children & adults)
	Indiana University School of Medicine Department of Neurological Surgery Emerson Hall, Room 139 545 Barnhill Drive Indianapolis, IN 46202-5124 Phone: (317) 274-5728 Fax: (317) 274-7351 Email: jcorbitt@iupui.edu	Contact: NF2 Michael B. Pritz, MD, Ph.D. (Cerebrovascular & Skull Base Surgery)
	Indiana University School of Medicine Dept. of Otolaryngology-Head & Neck Surgery Riley Children’s Hospital 702 Barnhill Drive, Room 0860 Indianapolis, IN 46202 Phone: (317) 274-3556 Fax: (317) 278-3743	Contact: NF2 Richard T. Miyamoto, MD (Otolaryngologist) E-mail: thuston@iupui.edu
	Robert D. Yee 702 Rotary Circle, #344 Indianapolis, IN 46202-5175 Phone: (317) 274-7101	(Neuro-Opthalmologist)

Iowa

	University of Iowa Clinic Dept. of Pediatrics/Genetics 200 Hawkins Dr. University Hospital Iowa City, IA 52242 Phone: (319) 356-2674 Fax: (319) 356-3347	Contact: Val Sheffield, MD
	University of Iowa Hospitals & Clinics Otolaryngology Department/Neurotology 200 Hawkins Drive Iowa City, IA 52242 Phone: (319) 353-7042	Contact: NF2 Jay Rubinstein, MD, Ph.D. Bruce J. Gantz, MD

Kansas

Kansas University Medical Center
Genetics - NF Clinic
39th & Rainbow Blvd.
Kansas City, KS 66106
Phone: (913) 588-3901 (appointments)
Fax: (913) 588-4060
Days of Operation: Daily, clinic on Wed afternoons (by appointment)

Contact:
R.N. Schimke, MD
Debra L. Collins, MS

Kentucky

	University of Kentucky, Dept. of Pediatrics Division of Genetics/Dysmorphology 740 S. Limestone Dr. Lexington, KY 40536-0284 Phone: (859) 257-5559 Fax: (859) 257-7706 Bethany Kelly, MS (859) 323-5883 Ronald Cadle, MS (859) 323-8026 Days of Operation: T, 9:00am-5:00pm (by appointment)	Contact: Carolyn Bay, MD (Division Chief) Bryan Hall, MD Ronald Cadle, MS Bethany Kelly, MS, CGS
	University of Louisville Weisskopf Center for the Evaluation of Children, Unit 541 571 South Floyd Street, #100 Louisville, KY 40202-3828 Phone: (502) 852-5334 Fax: (502) 852-7886 Email: kmchri01@gwise.louisville.edu	Contact: Joseph Hersh, MD, Director Gordon Gowans, MD Katherine Christensen, MS Teresa Monteith, MS

Louisiana

	Children's Hospital 200 Henry Clay Avenue, Department of Genetics New Orleans, LA 70118 Dr. Lacassie: ylacassi@chnola.org Dr. Thomas: tthomas@chnola.org Phone: (800) 299-9511; (504) 896-9254 Fax: (504) 896-9847 Days of Operation: Once a month	Contact: Yves Lacassie, MD, Director Tal Thomas, MD Michael Marble, MD Karen Weissbecker, Ph.D. Julie Lovell, MS
	LSU Medical Center Child Neurology Dept. Perinatal Genetics P.O. Box 33932 1501 Kings Highway Shreveport, LA 71120-3932 Phone: (318) 675-5649 (318) 675-7987 Dr. Chen	Contact: Harold Chen, MD
	Ochsner Clinic Foundation, Ochsner for Children Dept. of Pediatrics 1514 Jefferson Highway New Orleans, LA 70121 Phone: (504) 842-3900 Fax: (504) 842-3041	Contact: Duane Superneau, MD
	Tulane Medical Center Human Genetics Program 1430 Tulane Avenue New Orleans, LA 70112 Phone: (504) 588-5229 Fax: (504) 584-1763	Contact: Gabriella Pridjian, MD Hans C. Anderson, MD Kelly Jackson, MS

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