Neurofibromatosis, Inc.

Note: Blue background indicates NF2 resources are available.

Alabama

	Winfield S. Fisher III, MD Professor Department of Surgery Division of Neurosurgery The Kirklin Clinic 2000 6th Avenue South Birmingham, AL 35233-0271 (205) 934-1430	NF2
	Mark Hadley, MD Spinal Surgeon UAB Hospital 1802 6th Ave. South Birgmingham, AL 35249 ( 205) 934-9999 Make an apt online.	NF2
	University of South Alabama Gulf Coast Region - NF Clinic 307 University Blvd. CCCB Room 214 - Medical Genetics Mobile, AL 36688 Phone: (251) 460-7500 Fax: (334) 460-7684	NF1 & NF2 Wladimir Wertelecki, MD (Geneticist) Sandra Hudson, RN Barbara Russ, RN
	University of Alabama at Birmingham Children’s Hospital of Alabama Division of Pediatric Neurosurgery 1600 7th Avenue South ACC, 400 Birmingham, AL 35233 Phone: (205) 939-9653 Fax: (205) 939-9972	Contact: Paul A. Grabb, MD Email: paul.grabb@ccc.uab.edu W. Jerry Oakes, MD wjound@ccc.uab.edu
	University of Alabama at Birmingham Kaul 230, 1530 3rd Avenue South Birmingham, AL 35294-0024 Phone: (205) 934-9411 (205) 934-4983 (genetics) Fax: (205) 934-9488	Contact: Bruce Korf, MD, PhD www.uab.edu/genetics

Arizona

	Barrow Neurological Institute St. Joseph’s Hospital & Medical Center Mercy Health Care Arizona 350 West Thomas Road Phoenix, AZ 85013-4496 Phone: (602) 406-3078 Fax: (602) 406-7197	NF1 & NF2 William R. Shapiro, MD (Neurologist) www.thebni.com
	Children's Clinics for Rehabilitation Services Neurocutaneous Clinic 2600 North Wyatt Dr. Tucson, AZ 85712 Phone: (602) 324-3244	Contact: Eugene Hoyme, MD Mary Johnson, MD Cathy McManus, RN
	Children's Rehabilitative Services (CRS) St. Joseph’s Hospital & Medical Center Neurofibromatosis Clinic 124 West Thomas Phoenix, AZ 85013 Phone: (602) 406-6410 Fax: (602) 406-6120	Contact: Dr. Susan Gregg Joyce Stulga, RN
	Vinodh Narayanan, MD St. Joseph's Hospital and Medical Center, Phoenix 500 W Thomas Rd #400 Phoenix, AZ 85013 Phone: 602 406-3800	Pediatric Neurologist
	Phoenix Children's Hospital Director of Pediatric Neurology 909 E. Brill Street Phoenix, AZ 85006 Phone: (602) 239-4855 Fax: (602) 239-3862	Contact: Allen Kaplan, MD (Pediatric Neurologist)

Arkansas

	Arkansas Children's Hospital Arkansas NF/Genetics Clinic 800 Marshall Street, Slot 512-22 Little Rock, AR 72202 Phone: 501-364-2966 F ax: 501-364-1364 Email: kahlerstepheng@uams.edu	Contact: Stephen Kahler, MD
	River Valley Neurology Center 600 Lexington Avenue Fort Smith, AR 72901 Phone: (479) 709-7285	Contact: Joseph P. McCarty, MD (Pediatric Neurologist)

California

	Christopher P Ames MD University of California, San Francisco Department of Neurological Surgery 505 Parnassus Ave. Rm. M779 San Francisco, CA 94143-0112 Phone: (415) 353-3998	NF1 & NF2
	California Ear Institute 801 Welch Road Palo Alto, CA 94304 Phone: (415) 494-1000	NF2 Joseph Roberson, MD
	Cedars-Sinai Birth Defect Center NF Clinic Suite 1001 444 S. San Vincente Blvd. Los Angeles, CA 90048 Phone: (310) 423-9914 or (310) 967-1644 Fax: (213) 651-5381Days of Operation: 3rd T of each month, 12:45pm-4:30pm	NF1 & NF2 Stefan Pulst, MD (Neurologist) Julie Korenberg, MD (Neurologist) Cathy Stoppenhagen, RN (Clinic Coordinator)
	Cedars-Sinai Medical Center 8700 Beverly Blvd. Los Angeles, CA 90048 Phone: (310) 855-7900 Fax: (310) 967-0777	NF2 Keith Black, MD (Neurosurgeon)
	Cedars-Sinai Medical Office Towers 8631 West 3rd Street, Suite 945 East Los Angeles, CA 90048 Phone: (310) 659-6628 Fax: (310) 659-9712 Phone (Dr. Djalilian): (310) 657 7704	NF2 William Slattery, MD (Neurotologist) Hamid R. Djalilian, MD (Neurotologist)
	Children's Hospital Los Angeles Department of Neurology, MS# 82 4650 Sunset Blvd. Los Angeles, CA 90027 Phone - 323-669-2471 Fax - 323-667-2019 trosser@chla.usc.edu NF clinic hours of operation: Fridays 8:30 a.m. - 12 p.m.	NF1 & NF2 Tena Rosser, MD
	Children's Hospital/Oakland Medical Center Genetics Clinic 747 52nd Street Oakland, CA 94609 Phone: (510) 428-3550 Fax: (510) 450-5874 Days of Operation: M-F, 9:00am-5:00pm	Contact: Edward J. Lammer, MD Liane J. Abrams, MS
	Children's Hospital of Orange County NF Clinic 455 Main Street Orange, CA 92668 Phone: 714-288-3500 Fax: (714) 667-7040	Contact: Touran Zedeh, MD
	Children's Hospital of Orange County West Coast Pediatric Neurosurgical Associates 455 S. Main Orange, CA 92868 Phone: 714-289-4151 fax: 714-997-3758	NF2 Dr. William Loudon, M.D., PhD
	Samuel Ciricillo, MD Sutter Neuroscience Medical Group 2800 L Street Suite #500 Sacramento, CA 95816 Phone # 916-454-6511 Fax #916-454-6690	Contact: Janel Seno, Neurosurgery Coordinator
	Christopher Duma, MD HOAG Memorial Presbyterian Hospital 351 Hospital Road Newport Beach, CA 92863 Phone: 949.642.6787 Fax: 949.642.4833	NF2 Email: drduma@cduma.com Website: http://www.cduma.com/index.html
	House Ear Institute 2100 West 3rd Street Los Angeles, CA 90057-1922 Phone: (213) 353-7094 Phone: (213) 484-4431 Phone: (213) 483-9930 (Dr. Brackmann) Fax: (213) 484-5900 (Dr. Slattery) Fax: (213) 483-8789	NF2 William Slattery III, MD (Neurotologist) E-mail: Wslattery@hei.org Derald Brackmann, MD (Otolaryngologist) Todd Lanman, MD (Neurosurgeon)
	Kaiser Permanente 4647 Zion Avenue San Diego, CA 92120 Phone: (619) 528-0061 (Dr. Devor) Phone: (619) 528-2597	NF2 William Devor, MD (Neurology) Stephen L. Saltzman, MD ssaltzman@kpscal.org
	The Kaiser Permanente Medical Center 280 W. MacArthur Blvd., Genetics Department Oakland, CA 94611 Phone: (510) 752-6298 Fax: (510) 752-6754 Days of Operation: M-F, 8:30am-5:30pm	Contact: Ronald Bachman, MD (Geneticist)
	Kaiser Permanente Medical Genetics 6041 Cadillac Avenue Los Angeles, CA 90046 Phone: (323) 857-2467	Contact: Nancy Shinno, MD
	Kaiser Permanente Medical Genetics 13652 Cantara Street Panorama City, CA 91402-5497 Phone: (818) 375-2073 Fax: (818) 375-3635	Contact: Harold N. Bass, MD
	Kaiser Permanente-Orange County 1188 N. Euclid Anaheim, CA 92801 Phone: (714) 254-2704 Fax: (714) 254-2953	Contact: Diane L. Broome, MD (Geneticist)
	Todd Lanman, MD Neurosugery 120 South Spaulding Dr. Suite 400 Beverly Hills, CA 90212 310-385-7766	NF2
	Loma Linda University Children's Hospital 11234 Anderson Street Loma Linda, California 92354 (909) 558-8000 http://www.llu.edu/lluch/
	LAC-USC Medical Center Genetics Clinic IG-24 1129 N. State Street Los Angeles, CA 90033 Phone: (323) 226-3816 Fax: (323) 226-6073 Days of Operation: M-W, 8:30am-noon (clinic) M-F, 8am-5pm (office) Phone: (323) 857-2467	Contact: Atsuko Fujimoto, MD
	Long Beach Memorial Medical Center 2888 Long Beach Blvd., Ste. 150 Long Beach, CA 90808 Phone: 562-997-3990	NF2 Samuel R. Whitaker, MD (Neuro-otology) (Speaks Farsi and Spanish)
	The Neurofibromatosis Institute, Inc. 5415 Briggs Avenue La Crescenta, CA 91214 Phone: 818-957-3508 Fax: 818-957-4926 Riccardi@MedConsumer.com	NF2 Vincent Riccardi, MD
	Santa Clara Valley Medical Center 751 South Bascom Avenue San Jose, CA 95128 Phone: 408-885-5405	Contact: Marthand Eswara, M.D. (Clinical Geneticist)
	Stanford Otolaryngology HNS, 801 Welch Road Stanford, California 94305-5739 Phone: (650) 725-6500 Fax: (650) 725-8502 Website: http://med.stanford.edu/ohns/	NF2 Robert K. Jackler, MD jackler@stanford.edu
	Stanford University Medical Center Dept. of Neurosurgery R 205 300 Pasteur Drive Stanford, CA 94305-5327 Phone: (650) 723-5573 Fax: (650) 723-7813 Phone: (650) 723-5281 (Dr. Jackler) Phone (650) 723-2013	NF2 Steven Chang, MD (Neurosurgeon/cyberknife) John Adler, MD bpedrick@standford.edu Robert Jackler, MD (Otolaryngologist) Griffith R. Harsh IV, MD Email:gharsh@leland.stanford.edu
	Sutter Neuroscience Institute 2800 L Street, Suite 501 Sacramento, CA 95816 Phone: 916 454-6850 Fax: 916 454-6980	Contact: Christoper Wood, Director Nora Wu, MD Samuel F. Ciricillo, MD
	UCLA Medical Center Div. of Pediatrics, Genetics Ctr. 10833 Le Conte Avenue MDCC 22-499 Los Angeles, CA 90095-1252 Phone: (310) 206-6581 Fax: (310) 206-8616	Contact: Stephen D. Cederbaum, MD Michelle Fox, MS
	Univ. of California at Irvine Div. of Human Genetics, Dept. of Pediatrics 101 City Dr.. Bldg. 27, ZOT4482 Orange, CA 92868-3298 Phone: (714) 456-5791 Fax: (714) 456-5330 Days of Operation: M, T, Th, 1:00pm-5:00pm	Contact: Maureen Bocian, MD Ann Walker, MA Anne Spence, MD
	University of California at San Francisco Dept. of Otolaryngology-Neurological Surgery 400 Parnassus Avenue, A717 Box 0342 UCSF San Francisco, CA 94143-0342 Phone: (415) 476-3856 (Dr. Lalwani) Fax: (415) 476-0666 Phone: (415) 353-7500 (Clinic) Fax: (415) 502-2059	NF2 Anil K. Lalwani, MD (Otolaryngologist) Larry Pitts, MD (Neurosurgery) PittsL@neurosurg.ucsf.edu
	UCSF Institute for Human Genetics 513 Parnassus Avenue, HSE901E Division of Medical Genetics San Francisco, CA 94143-0744 Phone: 415-476-3202 Fax: 415-502-0720 Email: nussbaum@humgen.ucsf.edu	Contact: Robert L. Nussbaum, M.D.

Colorado

The Children's Hospital
Clinical Genetics
13123 East 16th Avenue
Aurora, CO 80045
Phone: 303-724-2370

NF1 and NF2
Eva Sujansky, MD
(Geneticist)
Janet Thomas, MD
Matthew Taylor, MD (adults)
Kristina Kocosis, MS
(children and adults)

Connecticut

	Dr. Charles Duncan M.D. Professor & Chief, Pediatric Neurosurgery Yale University School of Medicine Department of Neurosurgery 333 Cedar Street New Haven, CT 06520 Phone: 203-785-2809 Email: Charles.Duncan@Yale.edu	NF2
	Dr. John Strugar, M.D. Yale University School of Medicine Department of Neurosurgery 333 Cedar Street New Haven, CT 06520 Phone: 203-785-2807	Contact: NF2
	University of Connecticut Health Ctr. Neuro-Genetics Clinic Connecticut Children's Medical Center 282 Washington Street Hartford, CT 06106 Phone: (860) 545-9580 or 545-9450 Fax: (860) 545-9590 E-mail: Rgreens@ccmckids.org E-mail: FDiMari@ccmckids.org	Contact: Francis DiMario, MD Robert Greenstein, MD
	Yale University School of Medicine Yale NF Clinic/Dept. of Genetics 333 Cedar Street 305 WWW New Haven, CT 06520 Phone: (203) 785-2660 Fax: (203) 785-3404	Contact: Margretta Seashore, MD

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