Early Identification of Cognitive Deficits in Children with Neurofibromatosis Type 1

We are currently looking for young children with NF1 to participate in a research study at our institution. We are trying to learn more about how the brain works in infants and pre-school children with NF1. Children with NF1 less than 40 months of age will be eligible for participation. The study is sponsored by the U.S. Army Medical Research and Materiel Command, Department of Defense, Neurofibromatosis Research Program.

What: Participants in this study will undergo regular developmental and/or neuropsychological testing over the course of four years. We will also ask to include the results of your child's routine MRI scans in our study.
Where: Children's National Medical Center
Department of Neurology
111 Michigan Avenue, NW
Washington, DC 20010
Benefits: All developmental and/or neuropsychological testing will be free of charge. There are no costs for the research study and parking is free. Families will be paid for their participation.
Contact: Leah Seldin-Sommer, Study Coordinator at 202-884-4236;
or Maria Acosta, M.D., the Principal Investigator, at 202-884-2120,
email: macosta@cnmc.org.