Neurofibromatosis, Inc.
We are the national non-profit network serving families and individuals affected by Neurofibromatosis.

Neurofibromatosis, Inc.We are the national non-profit network serving families and individuals affected by Neurofibromatosis.

What is NF?The neurofibromatoses (NF) are genetic disorders of the nervous system, which cause tumors to form on the covering of the nerves anywhere in the body at any time. Three distinct forms of NF have been identified.
Find a DoctorNF, Inc. has compiled a listing of medical facilities with an interest in neurofibromatosis. Some facilities have established NF Clinics; others see NF patients in the context of a more general clinic, such as one specializing in genetics, neurology or neurocutaneous disorders.
EducationRequest a packet of NF information by mail, or enhance your understanding of NF through online tutorials and attendance at educational events.
Find a Local GroupThe NF, Inc. network is made up of independent local and regional organizations. These organizations can provide NF literature, support services and educational, social and fund-raising events.
Learn From OthersVisit NF, Inc.’s social networking site on Inspire to connect with others affected by NF.
Living with NFNF is a highly variable condition. It affects individuals in vastly different ways. We invite you to read personal profiles of individuals and families living with NF.
DonationsThere are many ways to be part of the mission to find treatments and a cure for NF. Whether you make a one-time donation, a recurring gift or a planned gift, your generosity insures that NF, Inc. can continue to promote and support the best treatments and patient care.
EventsWhether you organize a fundraiser or attend one, group events are a great way to help raise money for the NF cause and meet others with a passion for NF research and public awareness.
AdvocacyNF, Inc. is the national leader in the promotion of government-funded NF research. We need as much help as we can get to bring the NF message to Congress each year. Help us increase federal funding by writing to your Senators and Representatives.