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NF,
Inc.
is a national, tax-exempt, charitable organization whose mission
is to create a network of support for those affected by NF,
through education, advocacy, and coalitions, and by supporting
research for treatments and a cure. We encourage you to explore
our
site,
check back often, and contact us if you need further information. |
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NF
Guru Dr. Vic Riccardi
Supports National
Doodle Day
Dr.
Riccardi, known to thousands of NF patients,
and virtually every NF researcher
worldwide, as the man who brought NF out
of the closet in the 1980s, is
pictured above wearing a "Just
Ask" t-shirt, designed in the image
of Texas NF personality Reggie Bibbs (www.reggiebibbs.com).
This autographed
photo is offered on eBay as part of the National
Doodle Day auction. Click
here to view this item and join the bidding! Auction ends
Sunday, May 18; proceeds benefit NF, Inc.
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FDA Lobby Day 2008
During
Lobby Day activities on April 9, NF,
Inc. representative Walt Sanders and other members
of
the Alliance for a Stronger FDA met with Commerce Committee
Chairman John D. Dingell and top health policy staff
of U.S. House Energy to discuss the importance
of a fully
funded Food and Drug Administration.
The Alliance has over 170 members. Pictured,
left to right: Bernice Friedlander, President, National
Treasury
Employees Union; Steve Grossman, Deputy Executive Director,
Alliance for a Stronger FDA; Wayne
D. Palmer, Federal Government Affairs Director,
AstraZeneca Pharmaceuticals; Walt Sanders, NF, Inc.;
and Kurt Vorndran,
Legislative Representative, National Treasury Employes
Union.
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